dear friends,
i value ur friendship and i kw u care about me… i wish to lead as normal a life as i can… but i need ur help too… becos ur words and actions matter a lot to me…
here r some common comments i hv heard in the last 38 years of my intense battle with Behcet’s Syndrome…
1. but u look fine to me
2. it’s all psychosomatic – all in ur mind
3. u think too much, just be more cheerful, think positive, it will go away
4. just get some sunlight, u dont hv enough sunlight that’s why u r sick
5. exercise more, it’s becos u dont exercise enough that’s why u r sick
6. this kind of illness is for rich ppl with nothing better to do
7. u r not trying hard enough to get better… u dont take care of urself properly…
ok, i kw pple sometimes say such things becos they r uncomfortable, embarrassed to hear abt my suffering and dont kw how else to ‘cheer me up’… or just well-meaning but ignorant … but other times, the same words hv come from careless insensitive pple who hv absolutely no idea what chronic pain and incurable chronic illness feels like…
in any case… here are the facts…
videos for those who don’t like to read:
behcet’s syndrome: don’t worry u can’t catch it from me in ANY way… not even if i kiss u!!!
http://www.veoh.com/browse/videos/category/news/watch/v280155nEnJdpxj
vasculitis: which is part of behcet’s syndrome
http://www.vasculitisfoundation.org/video
fibromyalgia: often linked to behcet’s and other autoimmune conditions
http://www.youtube.com/watch?v=941kVoQh9_s
for those who wish to read more and find out the details:
Behcet’s Syndrome:
http://www.medicinenet.com/behcets_syndrome/article.htm
vasculitis:
http://www.nlm.nih.gov/medlineplus/vasculitis.html
http://www.vasculitisfoundation.org/
fibromyalgia:
http://www.webmd.com/fibromyalgia/guide/arthritis-fibromyalgia
ok… and i hv not even started to mention Asperger’s Syndrome yet… let’s just leave it here for now… this is enough pain information to deal with for anyone in one go…
and thanks for ur love and support… the fact that u r reading this far into my long note means U CARE ABOUT ME AND I VALUE YOUR LOVE…
xxxxxxxxx
hugs and kisses
